Lights 4 Tikes Christmas Lights Display in Sherburne
An annual holiday tradition has returned to Sherbourne, Lights 4 Tikes brings a 20,000 Christmas Lights display to the Chenango County village.
The project is the labor-of-love for Rick Crowell. This year, he reports on his blog, that a brand new ‘mega pole’ will bring the light display 35 feet in the air.
Each year the light display is set up as a fundraiser for a child in need of medical care. This year’s child is Layne Parks:
Layne Michael Parks was born on May 6th 2011. Not only was he born 2 and a half months early at just 3 pounds, he was also diagnosed with a rare genetic disorder called Prader-Willi Syndrome or PWS. PWS affects 1 in 15,000 births. It involves a missing 15th chromosome which controls Layne’s hypothalamus. PWS leads to low muscle tone, incomplete sexual development, low metabolism, decreased growth hormone production, decreased testosterone, and failure to thrive.
After spending 3 long months in the NICU Layne was finally able to come home. Layne was hooked to oxygen tanks, apnea monitors, feeding tubes… the works! Layne currently still see’s many specialists that include: neurologist, neurosurgeon, endocrinologist (1 in Long Island & 1 in Florida), nutritionist, pulmonologist, geneticist, ENT, orthopedic surgeon (1 in Syracuse and 1 in Philadelphia), and the list goes on.
Here’s a sneak at what Lights 4 Tikes looked like in the past:
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Lights 4 Tikes is located east of Sherburne on Turnpike Road just off of Route 80.